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Kate Swaffer was just 49 years old when she was diagnosed with a form of younger onset dementia. In this book, she offers an all-too-rare first-hand insight into that experience, sounding a clarion call for change in how we ensure a better quality of life for people with dementia.
Kate describes vividly her experiences of living with dementia, exploring the effects of memory difficulties, loss of independence, leaving long-term employment, the impact on her teenage sons, and the enormous impact of the dementia diagnosis on her sense of self. Never shying away from difficult issues, she tackles head-on stigma, inadequacies in care and support, and the media's role in perpetuating myths about dementia, suggesting ways in which we can include and empower people with the diagnosis. She also reflects on the ways in which her writing and dementia advocacy work have taken her on a process of self-discovery and enabled her to develop a new and meaningful personal identity.
Kate's powerful words will challenge misconceptions about dementia, and open our eyes to new ways of supporting people with the diagnosis. A must read for people with dementia and their families as well as for professionals and carers.
- Sales Rank: #338823 in Books
- Published on: 2016-01-21
- Released on: 2016-01-21
- Original language: English
- Number of items: 1
- Dimensions: 8.50" h x .98" w x 5.51" l, .0 pounds
- Binding: Paperback
- 392 pages
Review
Before being diagnosed with younger onset dementia, Kate Swaffer loved to study, to learn, to be of service to others. Now living with dementia, she has not changed in these respects whatsoever. Her wonderfully illuminating book should be required reading for people and families living with dementia. --Steven R. Sabat, Ph.D., Professor of Psychology, Georgetown University, Washington D.C., U.S.A.
Review
Before being diagnosed with younger onset dementia, Kate Swaffer loved to study, to learn, to be of service to others. Now living with dementia, she has not changed in these respects whatsoever. Her wonderfully illuminating book should be required reading for people and families living with dementia. (Steven R. Sabat, Ph.D., Professor of Psychology, Georgetown University, Washington D.C., U.S.A.)
About the Author
Kate Swaffer commenced her professional career as a nurse specialising in dementia and aged care. Following her diagnosis of younger onset dementia, she completed a BA in Writing and Creative Communications, a Bachelor of Psychology and a MSc in Dementia Care at the University of Wollongong, Australia. She now works as an advocate and activist for dementia and aged care, has published many articles and a book of poetry and has presented nationally and internationally on dementia. In 2015, she was named Dementia Leader of the Year in the University of Stirling International Dementia Awards and Emerging Leader in Disability Awareness in the National Disability Awards, was winner of the Bethanie Education Medallion, and was a state finalist in the Australian of the Year Awards for 2016. She is Co-founder and Co-chair of Dementia Alliance International, a board member of Alzheimer's Disease International and is to become a member of the World Dementia Council in February 2016. She blogs at www.kateswaffer.com, tweets as @kateswaffer and can also be found on Facebook.
Most helpful customer reviews
1 of 1 people found the following review helpful.
Living Beyond Dementia by Kate Swaffer (and that really is an awesome name) is a free NetGalley ebook that I read ...
By Kristine Fisher
What the Hell Happened to My Brain?: Living Beyond Dementia by Kate Swaffer (and that really is an awesome name) is a free NetGalley ebook that I read in early December. Continuing on my medical/mental non-fiction book, I thought I'd take a look at this Austrailian book for a new perspective on young onset dementia.
Swaffer uses short 1-2 page chapters to look at dementia from just about every angle. Her experiences is civic community groups and associations add to her credibility as an advocate and makes this book a necessary, no, critical read for the recent diagnosed and/or their loved ones.
0 of 0 people found the following review helpful.
Living & Thriving in spite of Dementia
By G. YEO
There are very few people in the world Iike Kate Swaffer. With the awareness that dementia strikes not just older people, but younger people as well, this book is very important as it comes from someone who has experienced it and continues to thrive in spite of a diagnosis that was delivered to her. I was fortunate enough to meet and film Kate, who now devotes her life to expanding the conversation on dementia and how it affects people, and improving the rights and dignity of those with dementia. She is what I would call a "rock star" in the world of dementia advocacy - there are few people I would imagine who live and walk the talk like she does. If you know of anyone living with young onset or mild dementia, this is an important book to get. Seek out her work and learn more about how her efforts to empower people with dementia.
0 of 0 people found the following review helpful.
A moving narrative that captures one woman's journey into young-onset ...
By GuilfordGraduate
A moving narrative that captures one woman's journey into young-onset dementia. A must read for anyone recently diagnosed who is searching for answers. Swaffer makes clear that life can be fully lived despite the setbacks and challenges that Alzheimer's presents.
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